I manage his pca services including hiring, firing, scheduling shifts, making sure they are doing their jobs, training and submitting timesheets. I refill his med container every sunday. I refill and pick up his meds from the pharmacy. I shop for some things, like clothes and bus fare tickets, and maintain a shopping list for toiletries and household things for the pca to get. I schedule all the transportation including special needs recreational transportation, medical transportation, and transportation to day program. I maintain an online calendar of all his activities. I sign him up for activities like special olympics. I schedule all doctor and dentist appointments. I make sure he does his homework (he's in 12th grade and will start college in the fall). I make sure he has school supplies. I manage all his money (obviously, as the SSI payee). I would be the one to respond if he is anywhere and has a behavioral issue or an emergency. I bring him food from food banks. Every sunday we have dinner at my mothers and sometimes she provides it and sometimes I bring it, and I help her cook and clean up for all of us. I assisted him with college enrollment, scholarship applications, I attend school meetings like his upcoming 504 meeting, and I will be the one to make sure the college has a copy of the 504 and accommodates him. I will be co-signing the lease so he can move into the dorms, and making sure they accommodate him. I made sure his apartment was furnished, and, with his $, I rented the truck and moved all the stuff in, and will do so again when he moves into the dorms. This is really the tip of the iceberg. There are many things that long term care doesn't cover. Thank you for your help